General References

Many caregivers feel overwhelmed when their loved one starts to demonstrate significant cognitive problems or when they are first diagnosed with a cognitive disorder. Even after seeing a physician, most caregivers continue to have unanswered questions. For example, we are commonly asked to explain the difference between Alzheimer’s Disease and dementia. Fortunately, there are numerous institutions which have useful online references, such as Alzheimer’s Texas, the Mayo Clinic, and the University of California San Francisco (UCSF). They may provide information about local resources for persons with dementia and their caregivers, opportunities to volunteer or otherwise get involved, or simply general education about dementia and related topics.

Local Resources:

Education Links:

National Caregiver Resources:

National Disease-Based Organizations:


  • AARP (Monday-Friday, 7 a.m. to 11 p.m. ET)
    • English: 1-877-333-5885
    • Spanish: 1-888-971-2013
  • Alzheimer’s Association (24/7, 1-800-272-3900)